Physically, Marilyn
Webb's book is big enough nearly five
hundred pages; but it seems much larger
in what it covers the vast and conflicting
scene surrounding death in America
today. From one perspective, it documents
Webb's personal journey, occasioned
by deaths in her family, in which
she learns to appreciate and work
with the wondrous event of a human
passing. But her path takes her (and
us) over a highly variegated landscape:
more than a dozen death stories (from
"dying hard" to a "good
death"), medical practitioner-researchers
struggling to reinvent the dying process
through management of pain and suffering,
hospice programs of varying effectiveness,
stories from heroic survivors of the
Quinlan and Cruzan cases, the Supreme
Court attempting to draw a line between
legal and illegal forms of assisted
death, and the inside of Jack Kervorkian's
rusty white van. Some episodes raise
considerable dismay: patients beyond
recovery are shunned during rounds
at a renowned teaching hospital; a
hospice doctor shows no remorse for
the severe undertreatment of pain
in a dying AIDS patient; the increasing
dementia of an Alzheimer's patient
destroys a family and impoverishes
his wife while doctors time and again
employ heroic means to prolong his
life. This aspect of Webb's book presents
a tragic saga of ineptitude and obtuseness,
of a medical fanaticism more damaging
than that of the pro-life advocates
who hounded Nancy Beth Cruzan's last
days.
On the other hand,
there is reason for hope. We eavesdrop
on conversations with energetic medical
researches and activists like Kathleen
Foley, Joanne Lynn, William Breitbart,
and Balfour Mount who are working
hard to improve end-of-life care,
supported by foundations such as Robert
Wood Johnson and the Project on Death
in America. Webb takes us with her
through her own shattering growth
experience in a weekend workshop with
Elisabeth Kubler-Ross. We seem to
become participants in the inspiring
death experiences of a Catholic priest
and a Buddhist practitioner. Such
wealth of personal narrative, the
fruit of the author's insight and
immense effort, is supported throughout
by authoritative reviews of the literature
on relevant topics such as medical
ethics, law, and hospice. Perhaps
the most useful of these surveys deals
with pain and symptom management;
her half dozen pages summarizing Dr.
Foley's principles and rules of pain
treatment should be taken to heart
and memorized by every clinician. The Good Death, then, seems
to combine the virtues of a gripping
short-story collection and an encyclopedia
on end-of-life care. Assurance of
reliability comes from the fifty pages
of documentary citations and from
the imprimatur provided by two introductory
essays from doctors who tend to occupy
opposite sides of the assisted-suicide
fence, Joanne Lynn and Timothy Quill.
Webb presents her incidents, characters,
and squabbles with a very even hand,
refusing to take sides as the narratives
develop. The opinions expressed are
those of her sources; the perceptive
reader is trusted to draw appropriate
conclusions. The rather utopian recommendations
at the book's end represent the author's
judgments, some of which will not
elicit unanimous agreement.
In its sheer competence
and scope, however, The Good Death,
points up a big social problem not
in view of what it sets out to do,
but because of what it omits. It is
a study, after all, of affluent America's
search for an agreeable demise. No
mention is made of the concerns and
circumstances of those populations
that are by definition forgotten:
the poor, the homeless, members of
underprivileged minorities, or those
who die as unwilling wards of the
State in lunatic asylums or prisons.
(Who would read such a book if anyone
were mad enough to publish it?) The
reading public will probably feel
satisfied that Webb has made a clean
sweep of her area: surely no hidden
corners remain! Those concerned with
correctional health care may nevertheless
read this book with profit. They will
feel that no one out there is even
thinking about end-of- life care in
prisons; they will have to think for
themselves. More to the point, the
model of the "good death"
presented by Webb is not altogether
out of reach even for prisons; it
is normative (more or less) for human
beings and thus presents itself to
corrections as a worthy goal to aim
for. As such, it offers a useful catalog
of challenges felt by the society
in general for which correctional
health care people will have to work
out suitable responses. Finally, the
several personal narratives will provide
concrete insights into the variety
of human ways of dying. Readers need
only to crank up the intensity of
these stories to allow for the increased
pathos that comes with dying behind
bars.